Today was a tough day. Karl had a meltdown after my daughter and I had visited him at Thanksgiving. He does not understand time very well and telling him we would be back at Christmas was not enough to console him as we left. His group home is awesome, but there’s nothing like family or loved ones visiting to make his day. Working with the group home staff, who are amazing and patient, working with doctors to ensure medications are appropriate to curtail behaviors, all of these things are extra details to work out and stresses to deal with. I have learned that patience and faith in God help me most during these trying times.
I would welcome any comments on what your struggles are, and what helped you through them, whether you are a parent, a family or professional caregiver, or anyone who supports an autistic adult.